My name is Meg.
It’s so surreal to be posting in here.. I went in for a full thyroidectomy because of 5 growths inside my thyroid and a few weeks later find out I’m a cancer patient at 28.
Just doesn’t feel real..
I guess I’m looking for advice on what to ask my new oncologist when I meet him? I have no idea what to expect!
Thanks for your time.. it’s so nice to see a community of support.
Hi Meg! I’m Susie. I’m almost 2 years out from my thyroidectomy. I know it is a lot to absorb. I suggest reading everything you can on thyroid cancer and the treatment. www.thyca.org is a great source of information. There is also an online community there that is way more active than the one here.
You may have a different experience, but when I first met my oncologist, she discussed a treatment plan with me. I had two types of thyca (one on each lobe) and it had just started to grow outside of my thyroid, but had not spread to my lymph nodes. I was 41 at the time. Because of these factors, she wanted me to do the 100 mCi. of radioactive iodine (RAI). The remainder of the visit was getting that set up and getting approval for the Thyrogen shots so I wouldn’t have to go off my thyroid hormone replacement meds. Ask about Thyrogen. She did say that I would need to do the low iodine diet for two weeks before the RAI. She told me to call the nuclear med dept. at the hospital and ask them about the diet (they told me to ask her…I ended up following the diet recommended by thyca.org). I didn’t know what to expect and the thought of RAI was super scary for me. The diet was hard. I was scheduled for RAI about 2 months after my surgery. I talked to the nuclear safety officer at the hospital on several occasions and he was great! He answered all my questions and I was confident I could get through radioactivity as safely (esp. since I have children) as possible. What you will read in some of the groups about RAI is scary, but it’s really not that bad. I highly recommend calling the hospital’s nuclear safety officer. Prepare ahead of time for the diet and RAI…that will make things easier. RAI wasn’t too bad. I actually enjoyed the time in isolation. I didn’t have any problems and felt completely normal….and was super happy to get off that diet a few days after RAI. Just take things one step at a time. Best of luck to you!